Okizu encourages you to obtain more information about any resource prior to selecting a provider.

Andre Sobel River of Life Foundation

The André Sobel River of Life Foundation is seeking essay submissions for their annual André Sobel Award for young survivors of catastrophic illness. The award recipient will receive a $5000 cash prize to use as he or she chooses.

Camp Okizu and Palo Alto University Study Opportunity – $100 Raffle

Researchers from Palo Alto University are conducting a study to evaluate the impact of Camp Okizu Bereavement camp for adolescents (13-20’s) who have lost a sibling. If you choose to participate, a researcher will contact you via telephone or e-mail to schedule an interview. A parent will complete a demographic questionnaire as well as psychological measures about their adolescent. It will take 5-15 minutes to complete their set of measures twice (before and 3 months after camp). The adolescent will be asked questions about him/herself, in the form of self-report measures for their quality of life, and psychosocial functioning and emotional wellbeing. It will take 40-60 minutes to complete their set of measures twice (before and 3 months after camp). The researchers will either conduct the surveys via teleconference (phone or Skype), or email your family a link to the online questionnaires.

For every completed set of surveys, participants will be entered into a raffle to win a $100 gift card at the end of the study.

If you are interested in participating in this study, please contact the researchers at: CampOkizuSiblingStudy@gmail.com or 949-385-2844 and let them know which form of survey you would prefer (online, over the phone, via skype, or by mail).

Cancer for College

Cancer for College offers scholarships for cancer survivors.

Coping With Chemo

A series of online animated stories designed to help teens learn how to cope with the challenges of having cancer and undergoing treatment.

CoachArt

CoachArt improves the lives of chronically ill children and their siblings by providing them with free lessons in the arts and athletics. Lessons can take place in the child’s home or out in the community. CoachArt’s programs serve youth in the Bay Area between the ages of six and eighteen.

Children’s Council of San Francisco

Children’s Council of San Francisco works to improve the well-being of children, parents, families, and child care providers. They strive to make affordable, high-quality child care a reality for all working families.

Education Resources – IEP and 504 Plans

Link to Stanford’s HEAL program IEP and 504 video.

Elk Grove Regional Scholarship Foundation SIBS Scholarship

Created by an Okizu counselor/former camper in memory of her sister, this scholarship is for Elk Grove Unified School District high school students who will be attending a four-year college or university, vocational college, or community college and have a family member who has or has had cancer.

First Descents

First Descents strives to become the leader in innovative camps supporting young adults with cancer. Using kayaking, extreme sports and professional athletes, First Descents offers young adults with cancer outdoor experiences that will forever change their lives.

Genentech’s Everyday Needs Assistance Program

In 2009, the Genentech Foundation established the Everyday Needs Assistance Program to provide financial assistance to organizations that support families with children facing cancer. For more information on these organizations, visit the Genentech Foundation’s website.

George Mark Children’s House

George Mark Children’s House is the first freestanding children’s respite and end of life care facility in the United States. The House, located in San Leandro, California, offers respite support (round-the-clock), transitional care, and end of life care for children with life limiting or life threatening illnesses.

The Complete IEP Guide

How to Advocate for Your Special Ed Child
800.728.3555

Internet Safety Tools & Tips

We’ve put together some tools and tips for parents and campers.

Jessie Rees Foundation: Never Ever Give Up!

Jessie Rees Foundation provides Joy, Hope and the encouragement to Never Ever Give Up to courageous kids fighting cancer all over the world. As members of the Courageous Kids Connection, kids fighting cancer and their families receive boosts of Joy throughout the year from the Jessie Rees Foundation.

JRF has a list of over 1,000 resources for families dealing with pediatric cancer. Jessie wanted every child fighting cancer to know that they are not alone.

Junior Giants

Junior Giants, is a free, non-competitive and innovative baseball program for boys and girls ages 5-18 years old.They work closely with members of the community to teach more than baseball, to focus on the four bases of character development- Confidence, Integrity, Leadership and Teamwork- and offers programs in Education, Health and Violence Prevention!

Kara

Kara provides compassionate support to people of all ages on their journey through grief so that they can move toward renewed hope and meaning. Kara is a nonprofit organization serving the San Francisco Bay Area since 1976. Services are provided primarily by volunteers who have experience in healing from personal loss.

Kids & Art Foundation

Kids & Art Foundation teams up pediatric cancer families with amazing artists when they need it most. We heal through the arts in hospital waiting rooms, pair up kids/teens/AYA on 1:1 basis and group art experiences at creative destinations, and we help create a lasting memory with a family in hospice or in bereavement.

National Alliance for Grieving Children

The National Alliance for Grieving Children (NAGC) provides a network for nationwide communication between hundreds of professionals and volunteers who want to share ideas, information and resources with each other to better support the grieving children and families they serve in their own communities. Through this network, the NAGC offers online education, hosts an annual symposium on children’s grief, maintains a national data base of children’s bereavement support programs and promotes national awareness to enhance public sensitivity to the issues impacting grieving children and teens.

National Brain Tumor Foundation

NBTF is a national non-profit health organization dedicated to providing information and support for brain tumor patients, family members, and healthcare professionals, while supporting innovative research into better treatment options and a cure for brain tumors.

National Center for Learning Disabilities

The National Center for Learning Disabilities team envisions a society in which every individual possesses the academic, social and emotional skills needed to succeed in school, at work and in life.

National Students of AMF Support Network

The National Students of AMF Support Network is a nonprofit organization dedicated to supporting college students grieving the illness or death of a loved one. The organization accomplishes its mission by creating Students of AMF Campus Chapters on college campuses nationwide that connect and empower grieving college students to support one another and participate in community service in memory of deceased loved ones, raising awareness about the needs of grieving college students, including through the annual National College Student Grief Awareness Week, and hosting national grief support programs, such as the “We Get It” Supportive Blog, and events, such as the National Conference on College Student Grief.

Pediatric Brain Tumor Foundation

The Pediatric Brain Tumor Foundation is the world’s largest nonprofit funder of childhood brain tumor research. We serve the more than 28,000 children in the United States who are living with the diagnosis of a brain tumor. Our programs include free educational information about brain tumors, college scholarships, Ride for Kids motorcycle charity events and Starry Night walk/runs.

PG&E Discounts and Programs

The Family Electric Rate Assistance Program: discounts on electric bills for income-qualified households (of three or more people). The California Alternate Rates for Energy Program: discounts on energy bills for income-qualified households (any number of people). Energy Savings Assistance Program: provides income-qualified renters and homeowners with easy, free solutions to help manage their energy use and save money on their monthly energy bills. Medical Baseline: Get additional quantities of energy at the lowest (baseline) price for residential customers. To qualify for Medical Baseline, a California-licensed physician must certify that a full-time resident in your home has one of these medical conditions: Dependent on life-support equipment while at home, a paraplegic, hemiplegic, quadriplegic or multiple sclerosis patient with special heating and/or cooling needs, a scleroderma patient with special heating needs, a life-threatening illness or compromised immune system with special heating and/or cooling requirements to sustain the patient’s life or prevent deterioration of the patient’s medical condition. Relief for Energy Assistance through Community Health Program: REACH is a one-time energy-assistance program sponsored by PG&E and administered through the Salvation Army from 170 offices in Northern and Central California. Those who have experienced an uncontrollable or unforeseen hardship may receive an energy credit up to $200, credit amount based on the past due amount of the bill. REACH assistance may be available once within an 18 month period, but exceptions can be made for seniors, the physically challenged and the terminally ill. Third-Party Notification: If you care for a friend or relative who could overlook paying his or her PG&E bill because of illness, financial hardship or other issues, PG&E’s Third-Party Notification can help. Under this program, PG&E will notify a designated third party when the person you’re concerned about ever receives a late notice due to an unpaid PG&E bill. The designated person is not responsible for paying the bill, but might want to contact PG&E to help resolve the issue.

Planet Cancer

Planet Cancer is a community of young adults with cancer in their 20s and 30s. A place to share insights, explore our fears, laugh, or even give the finger to cancer with others who just plain get it.

Project Grace

Project Grace brings together grieving mothers, fathers, and families, with the purpose of traveling together, sharing memories of loved ones, gaining insight and perspective from cross-cultural sharing, and finding renewed meaning through service to others.

Research Study Opportunity

Research study opportunity! If you were between the ages of 11 and 18 when you were first diagnosed with cancer and can participate in this study prior to high school graduation, please consider participating. All participants will receive a choice of a $10 gift card. Contact Lila Pereira at lpereira@paloaltou.edu to see if you qualify and participate.

Sierra Hospice’s “Camp Hug”

This bereavement camp is for children ages 8 to 18 that have had a loss that has impacted their lives in the past 5 months to 2 years. There is no cost to them, though family must provide transportation to and from camp. Bunk houses, meals, showers, and a large volunteer staff are provided.

Sonoma Children’s Cancer Foundation (Children’s Cancer Community)

Provides emotional & financial support for children with cancer & their family members.

Starbright World

Web-based social network developed for teens living with a chronic or serious illness (and their siblings) to help them connect with other teens in similar situations.

SuperSibs

Reaching out to the brothers and sisters of over 12,600 children in the U.S. and Canada who are diagnosed with cancer each year. Through our work, these siblings will feel valued, validated, heard, supported and delighted as recipients of SuperSibs! services and as participants in SuperSibs! activities.

Ulman Cancer Fund for Young Adults

The Ulman Cancer Fund for Young Adults is committed to helping young adults continue their education after being affected by cancer through their own diagnosis or the diagnosis of a loved one.

Wellness Within

A nonprofit Mind-Body Wellness Center for patients, survivors, and families coping with the stress of cancer.